I think now more than ever we need to say this to others if we find ourselves struggling. Don’t be scared to admit you need a bit of kindness at times
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I am suffering this week. My thumbs have been so painful recently and have got so much worse this week. My fingers have been swelling a lot too. Normally I would call and make an appointment with my consultant for cortisone but I honestly don’t know if I would even get an appointment given what’s going on right now. I could honestly cry
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I’ll be awake for awhile watching movies, message me if you need to chat about anything.
My stomach is burning. And I have RA but when it’s burns my face and stomach itches
Does anyone else have facet arthropathy and cervical kyphosis?
...am I being overly cautious? ....
🌹🌹🌹PMA Post 🌹🌹🌹 How are we all doing this weekend? I’m struggling with my hands still, hospital still hasn’t opened up their appointments so still in limbo a bit. I’m still pushing through and did some planting yesterday in my hanging baskets and planters. Have you done anything nice this weekend despite the pain?
🌹🌹🌹 PMA Post 🌹🌹🌹 I have to constantly remind myself every morning that I can get through this, I can work through the pain, and it won’t be like this all the time once things go back to normal. It’s hard but I have no choice but to keep going. What are the little things that keep you going each day?
🌹🌹🌹 PMA Post 🌹🌹🌹 I have found a few things recently that help short term - my tens machine and gloves, wax bath, heated lavender cushion. I wanted to share these as perhaps you would like to try one of them, or maybe you have ideas of your own as to what helps ease the pain a bit. Share with us any ways you have found which help 😊
Not happy! Just called the hospital to see what the situation is now as far as them being able to give cortisone injections as I’m well overdue and really struggling. The usual consultant is leaving so the receptionist was checking for appointments and she discovers they discharged me because my 6 month open appointment had obviously expired. When I spoke to the consultants secretary months ago she said that would be ok as open appointments wouldn’t expire due to current circumstances. Raging! Thankfully the receptionist has put me back on the list and backdated me but there are still no appointments available as yet and a huge backlog so I’m no further forward than I was and in increasing amounts of pain
I’m keen on getting my body involved but unsure where to start
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So I finally thought I was getting somewhere on Monday as I had a call from the hospital booking line. Here’s me thinking at last I’m going to see a consultant to sort out my very long overdue cortisone injections. But no! It was an automated call asking if I wanted to stay on the waiting list - HELL YES I DO - and saying they will be back in touch as soon as they can but it won’t be for some time due to only just opening back up certain clinics. I honestly could have cried
My pain from RA and advanced osteoarthritis has been greatly impacted by the extreme stress and anxiety that has over taken my life. I am struggling immensely to make my own self care a priority. The more stress the worse the pain. I am afraid of the damage to my shoulders. I am afraid of the damage that occurred prior to treatment. I am struggling to prioritize “me” to return to the program of exercise vegan diet and supplements. This approach kept all symptoms to minimum. I felt strong and positive. My chaotic difficult personal life has taken over I feel extreme stress every day this is causing depression which makes the motivation needed to refocus on me seem like a mountain I have to figure out how to climb. For the first time I am scared and losing my optimism I am struggling with creating a mindset that I prioritize me. Right now I am last and not focused
It’s fair to say I’m really struggling right now. Not only is this because my cortisone injections are nearly a year overdue, but my right shoulder is getting even worse and I’m finding it harder with each passing day to find the strength to keep smiling. I stand up and feel like I’m 20 years older than I am. I need to vent and this is the only place I can do that
Hi, I am Jane and this is my first post here. I have osteoporosis and osteoarthritis throughout my body. I have had both knee joints replaced. Other than major infection in both knees, they are doing pretty well. I had a much longer healing process with the right one and eight surgeries on it. I had IV antibiotics at home for six weeks with each knee. I also had the reverse joint replacement on my right shoulder. It was more painful than ALL my knee surgeries put together. I am not sure I would do the shoulder if I had known before how it would be. I did have a fall and damaged it, but I am not going to have it fixed. I have been through enough. My left shoulder needs surgery but I am not going to do it. I am right handed and have had to learn to do a lot of things with my left hand. The left shoulder pops in and out of socket. That hurts. But no surgery. The pain sometimes goes up my neck. But no surgery. My right arm is not as mobile as it was before surgery. I can’t reach my back with it to scratch. Gotta think of those little things too. So, anyone thinking about having shoulder replacement, do please do plenty of research and ask questions. Question several people that have had the replacement before making a decision.
Hi, am new am just wandering is anyone taking hydroxcholoquine for RA. I am getting lots of side effects and can’t eat certain foods at the moment. I have been told to come off it from today till Tuesday cold turkey. I tried to call my doctor to see if they can put me on something till Tuesday. Not sure what to do I don’t really want have a flare up just feeling some symptoms already.
Has anyone had A RADIO FREQUENCY ABLATION PROCEDURE? I have to have it done in my tailbone for pain control I hope next week Has anyone had success?
Hey Everyone. @mary-leadbetter just joined the group. Please join me in welcoming them and introducing yourself here!
🌹🌹🌹PMA Post 🌹🌹🌹 Just checking in to see how everyone is doing. I’m struggling if I’m being honest, and I’ve now also got impingement in the shoulder which isn’t affected by OA. All I can do is take it one day at a time and hope that my consultant is able to start giving injections again soon.
Sure is a pain.
I finally got some good news this week! I’ve got my appointment with ortho next Wednesday, so fingers crossed I will be getting my injections in my thumbs! I could honestly cry with relief