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frisbee
2 Jun
🌻Happy Tuesday Wisdo Wonderfuls!🌻 Our weekly session will kick off in just 15 minutes! We’re going to be talking about what we DON’T do while living with our condition! I invite you all to join in the “Restoration Wellness” Session today for great conversation and meet many great people! ☺️💜
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frisbee
2 Jun
⏰ 5 Mins. ‘til the “Restoration Wellness” Session! ⏰ We’ll be discussing what we DON’T do while living with our chronic illness! Please join in! 1PM EST ⭐️
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Sun
4 Jun
Hey guys
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Sun
4 Jun
I am in hospital because of seizures
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Tropical Fish
4 Jun
Anyone else here been diagnosed with Epilepsy later on in life? I started having auras when I was 14 (my doctor said they were panic attacks from my anxiety) and by the time I turned 19 I had my first grand mal seizure.
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Rabbit
7 Jun
Does anyone else’s epilepsy get worse/feel worse after exercising ?
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Owl
7 Jun
Hi guys. I've had Epilepsy since birth and found out about it at 7. I was also diagnosed with non epileptic seizures about 2 years ago. So if anyone needs advice about the condition. I know quite a lot. Feel free to drop me a message. Keep smiling 😊
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frisbee
9 Jun
🌠 1 hour ‘til our super exciting session! This week, we’ll be discussing how our chronic illnesses can actually be a blessing! 🌠 Join in the “Restoration Wellness” conversation today at 1:00pm EST! See you soon! 😉✌🏼💜
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frisbee
9 Jun
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Owl
10 Jun
Hi guys! I understand everyone struggles...If you're looking for a bit of motivation. Follow a community called the Daily Blog. Its run by helpers and there to motivate you. I am one of them so if you have any questions I am happy to help 😊💪🧠✌💕 Just type in "Daily Blog Group" Any suggestions are welcome! Here to help! Here to make a positive change! Let's work together 💪
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Owl
11 Jun
If anyone is having a bad day or needs support. Feel free to drop me a message. I'm here to listen 😊
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Rabbit
16 Jun
Random question but does anyone know how much sleep someone with epilepsy should get?
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frisbee
16 Jun
Hi Elina, I’ve lived with epilepsy for over a decade and sleep deprivation is one of my biggest triggers. It’s good to get at least a solid 8 hrs sleep if you can. 😴
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frisbee
16 Jun
Happy Tuesday Wisdo Wonderfuls! 👋🏼😉 Join in today’s “Restoration Wellness” Session at 1PM EST!☀️ We’ll be talking about how our chronic illness has changed us! Your voice matters and we can help one another along our journeys! See you soon! 👋🏼☺️💕
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frisbee
16 Jun
30 minutes ‘til the “Restoration Wellness” Chat! Meet others on their journeys, share advice and encouragement! We have an exciting discussion lined up today and can’t wait to open the floor for conversation! See you soon! 👋🏼😉💕
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Owl
20 Jun
Hey beautiful people! I'm here if anyone wants a chat today. We can get through this 💪🌟💛
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frisbee
23 Jun
Good morning Wisdo Wonderfuls! What are your top 3 things you are grateful for this morning? ☀️🌳
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frisbee
23 Jun
Happy Tuesday Wisdo Wonderfuls! 👋🏼😉 Come check out today’s “Restoration Wellness” Session at 1PM EST! Discussion ‪► Pessimism Prevention And how we can keep positive in the face of a chronic illness. You won’t want to miss out! ✨
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frisbee
23 Jun
⏰🥳 15 minutes ‘til the “Restoration Wellness” Session begins! 🥳⏰ Jump in on an exciting conversation, meet others and be encouraged! At the end of each session, we invite you to give your “Session Feedback” ✅ This helps me to know if you enjoy my sessions or if there is an area that you feel that I can do better! Thank you! ☺️
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frisbee
7 Jul
Happy Tuesday Wisdo Wonderfuls! Today’s session in “Restoration Wellness” is gearing up to be majorly exciting! We are going to be talking about how our chronic illnesses have shaped us into who we are today! Join in the conversation at 1PM EST! See you there! 😉💜
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frisbee
7 Jul
30 mins. Wisdo Wonderfuls! Today’s session in “Restoration Wellness” is gearing up to be majorly exciting! We are going to be talking about how our chronic illnesses have shaped us into who we are today! Join in the conversation at 1PM EST! See you there! 😉💜
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frisbee
8 Jul
I'm here if anyone wants a chat🐻
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Owl
9 Jul
Hey guys, if anyone needs a chat or someone to listen. I'm free. Remember you're all beautiful inside and out💛
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frisbee
14 Jul
🚨One hour until our exciting session in “Restoration Wellness” Wisdo Wonderfuls! 🚨 Today’s discussion we are asking “What is the hardest part of living with our chronic illness?” I look forward to seeing each one of you today at 1PM EST!
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frisbee
14 Jul
⏰ 5 minutes ‘til our session Wisdo Wonderfuls! I’m looking forward to seeing and chatting with you all today!
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Canoe
18 Jul
Hey there! This is a new group and new experience for me. My little companion, CoCo died yesterday after at least twelve episodes over 9 days. The vet concluded the cause was a tumor. There was never any hint that this 5yo puppy was anything other than hyper, energetic and perfectly healthy.
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frisbee
21 Jul
🌸15 minutes until our Session Wisdo Wonders! Today, we’ll be discussing what it’s like to live with our conditions! Don’t miss out! 1PM EST! See you soon! 😉
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Lion
22 Jul
I wish this groups wasn't so dead it sucks all the seizure groups are dead while the depression groups are active I shouldn't complain not many ppl in the world are epileptic a Lotta ppl are depressed 😢
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frisbee
26 Jul
Happy Sunday Wisdo Wonderfuls! It has been a tremendous pleasure connecting with so many amazing people within this community! With that, Tuesday 1PM EST will be my LAST Restoration Wellness Session! I have thoroughly enjoyed our conversations, learning about your journeys and being there to help along the way! I wish you all the very best along your journey and know your will move many mountains! So this Tuesday, let’s have an incredible last conversation! Hope to see you then! 💜
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frisbee
7 Aug
Here if anyone needs to chat whenever 💚
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Bear
9 Aug
I have partial complex
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Mango
10 Aug
Does anyone have nocturnal seizures? If there are do you get anxious about going to bed?
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Owl
16 Aug
Hi guys, has anyone ever changed their dosage and let their epilepsy nurse know? I just know my epilepsy well enough to know I don't need as much as I'm getting. Does anyone have any advice?
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Trumpet
1 Sep
Hi everyone I haven’t been on here in along time & hoping everyone is well. I just wanted to pop on because I’m having a lot of problems mentally, I keep going a couple months seizure free and then all of a sudden I have a turn/seizure with no triggers (which I am in major denial because don’t think it was one) it’s just really hard because I had been 6 months seizure free which is the longest and I’m aiming to get my license and feel more confident towards my studies as I’m studying nursing. So I guess I just wanted to ask for any advice on how to cope and also if anyone out there is a nurse how that works when you have epilepsy and also wanted to vent....
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Trumpet
1 Sep
I also get major anxiety and not sure if I should change my meds and also nervous if I do my depression will get worse because I’m currently on lamotrigine which I think is an antidepressant - idk about all of that but just needed to vent tbh
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Rabbit
3 Sep
My medication makes me so tired and I’ve always put up with it but now I’m working so much I’m becoming exhausted and too tired does anyone have any tips on how to reduce tiredness or wake myself up a bit without affecting my epilepsy?
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Owl
7 Sep
Does anyone else get spasms and headaches randomly?
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Owl
18 Sep
Hi guys does anyone know the deal with Epilepsy and driving?
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Owl
7 Nov
I had a seizure at work on Monday, going to the doctors today to check up.
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Owl
22 Nov
Hello Beauties!!! How are we all today? I hope you're doing okay....if not drop me a message. Let's talk 💪💛 You can get through this.
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Tennis
2 Dec
I had a grand mal seizure the other morning while I was sleeping. I'm not sure what brought it on. I do remember my dream beforehand so maybe my crazy dream.
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Owl
5 Dec
I hate my broken brain, it’s insane. Yo I rain in the shades, darkness goin’ Swayze. I sawed the pain. This darkness life is lame. This life uh gimme a shot, uh don’t wanna part of it. God, epile’psycho oh no, I know yo here. Demons fight now, just show I wanna know, if yo low. I crush you like a slug, I’m writin’ this lyrics on yo hell doorstep wham! like poop bag on yo rug. Ha I ran, you doin’ nothin’ you just mock it. Come on catch me cute pug cuz I wanna cock it. Bam!
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Tiger
9 Dec
Anyone els wake up from sleeping not knowing if they really had a seizure or if it was just a dream? It confuses me so much🤦🏻‍♀️
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frisbee
15 Dec
If you want a chat, message me.
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Duck
12 Jan
Hi everyone I don’t have epilepsy or seizures but my best friend has recently been diagnosed with epilepsy and I don’t know how to help her
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Elephant
21 Jan
Here to gain knowledge my daughter has Seizures and is in the hospital for them
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Violin
28 Jan
Has anyone dreamed of having seizures? I had one last night in my dreams. Not physically, though. It was pretty scary regardless. How do you get those flashlights out of your mind?
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Ice Cream
24 Feb
Does anyone take Lamictal and experience memory issues?
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Full Moon
26 Mar
Keppra here 1000 twice a day and still sometimes have issues
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Turtle
31 Mar
Join me in welcoming Marian to show your support. Reply and say hi 😊
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Koala
Wednesday
Has anyone had the VNS? My medication has failed and I was referred for brain surgery years ago but then refused it (I was 17 can’t remember the details on why I was refused but I think it was because I have both partial, petit mal and generalised seizures so they said something about not being able to figure out where they would operate?) But, since then I have had a second opinion under England instead of Wales and been told I am...quite severe... and that the VNS whilst awaiting brain surgery (again) could be a good option...has anyone had any success with this?
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