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Grapes
15 Jul
I start physical therapy tomorrow! And supposedly, I’ll be getting some dry needling! Anyone have experience with dry needling?
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Grapes
23 Jul
I hate my body so much. It ruins o many things that I want to do because of the pain. I’m 23 and can’t even go to a theme park because I can’t walk all day. It sucks that if I want to enjoy something, I have to take pills or I can’t go. Even taking pills doesn’t help all the way. I feel like my body is so old and in pain.
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Tiger
31 Jul
Being a woman who has Fribro and who wants a demanding career I worry that I would be a good wife and mother. I worry if I could do it all.
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Grapes
2 Aug
What do you do for burning nerve pain?
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Full Moon
4 Aug
Does anyone detox for to improve fibromyalgia
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Octopus
9 Aug
Has anyone in this chat applied for disability specifically for fibromyalgia at all before ??? I have a judge hearing coming up soon next month and I’m super nervous about it. I would like some tips someone’s can offer who’s been in this position before or has applied and or has won their case....??! Thanks in advance 😊 🙏🏽💕
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Turtle
10 Aug
I am sick and tired of being sick and tired. I was doing so damn well with my pain since I got my implant taken out just over a year ago. And now these last two weeks have just been hell on my neck. I’m scared that it will end up like last time. I’m scared that it will kill me this time. And I’m just so fucking sick and tired of being sick and tired.
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Honeybee
10 Aug
🌿🌼 PMA 🌼🌿 The UK is super hot right now and I find that when I’m overheating, my pain levels get worse 😰 What’s everyone’s tips for surviving the summer months? 🌿
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Violin
11 Aug
Hello everyone, my name is Liberty but you can call me Libby. Today I was diagnosed with fibromyalgia after years of dealing with the symptoms of this, and being ignored by doctors I found a good doctor who listened and did blood test (to rule out other causes). Feeling so relieved to put a name to what I'm dealing with, and that I wasn't going crazy. I've been put on amitriptyline hydrochloride 10mg to see how I go.
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Canoe
17 Aug
Today is the end of the work week for me and it’s the first whole week I’ve worked since January. And lemme tell you...I am sooo exhausted. But I’m pretty proud of myself. I’ve been managing my fibro for about 2 years now, but a lot of changes happened in January to include my husband moving out and me having the kids 100% of the time. I never realized how much my fibro is triggered by stress and exhaustion.
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Octopus
25 Aug
Can’t sleep in so much PAIN!!!
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Lion
27 Aug
Why am I just finding out there are currently 3 FDA approved drugs to treat fibromyalgia? In my second week of taking Duloxetine. It’s an SNRI typically marketed as an antidepressant, but it’s also a nerve pain medicine and FDA approved for Fibro. And it’s insane how much it’s helping me... less pain and fatigue, more mobility. Almost immediately started seeing results. It had some side effects.... a lot of nausea, jitteriness, and anxiety in the beginning, but that’s starting to subside and it’s a trade I was willing to take.
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Lion
27 Aug
Three FDA approved medications for Fibromyalgia: Duloxetine (Cymbalta), Milnacipran (Savella) and Pregabalin (Lyrica)
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Octopus
29 Aug
Last month me doctor confirmed I have moderate fibromyalgia after being diagnosed with lymphedema. Most days I can barely move, and just trying to do daily tasks are becoming harder each passing day.
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Octopus
3 Sep
I already take tramadol, diclofenac, and Cymbalta for my pain, but my pain management doctor has put me on baclofen. Anyone else have experience with that med?
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Tiger
4 Sep
Does anyone work out? I know, it’s an insane question for most but I’m trying to lose weight and want some pointers on working out without having a flare up. I’d just go to the pool but it’s closed due to Covid.
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Ice Cream
16 Sep
Anyone else attempting to avoid medications for Fibro (gabapentin, lyrica, etc) and trying to manage pain and fatigue through diet, vitamins, and light exercise? My doctor supports trying this approach first. Anyone there or been there?
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Lion
19 Sep
Been applying for disability and just had the physical exam this week. Disability claims can be overwhelming/exhausting, so here for you all if you have any questions I can answer. Live in Seattle WA btw
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Grapes
27 Sep
Does anyone have problems with your hands not working right? Like, I’ll try to open something or shuffle cards and my hands just don’t wrk right. Like my thumb doesn’t function properly when shuffling.
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Turtle
30 Sep
I need a buddy to help me quit smoking cigarettes. Is there a sub for that? Or is anyone in this group interested in being my buddy?
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Maple Leaf
13 Oct
Any reviews of pregabalin for fibromyalgia?
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Grapes
29 Oct
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Maple Leaf
1 Nov
My flare up gave me brain fog yesterday.
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Lion
4 Nov
Have more energy since starting duloxetine... it’s been a life saver. But it’s never enough! 😅 the more energy I have the more I want... they always say go slow to not trigger more flares, but shoot! That’s hard. I WANT to play catch up for all the time I missed
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Maple Leaf
20 Dec
I’m tired as hell.
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Maple Leaf
20 Dec
I’m not feeling brave in sharing this with you all, but I’m having the longest flare up of the year. It feels endless. Endless Brain fog. Endless exhaustion and endless sense of lethargy. I feel as if I’ve not done enough to manage this. I think it isn’t really my fault but I feel like the things that help manage it, I haven’t even touched yet. I feel like such a failure: that’s why. People know me to be so active and I can’t even muster up the energy to get through a few hours of school
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Grapes
28 Dec
Anyone have urinary problems?
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Full Moon
4 Jan
My bones hurt and my spine feels bruised. Longest flare up everr
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Tiger
7 Jan
I’m so scared that my pain right now is the beginning of a flare up! I just don’t have time for it at all!
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Tennis
19 Jan
Anyone had a carer on here, I could really use some to talk to about mine? Thanks 👍🏻
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Maple Leaf
5 Feb
I spoke to my psychiatrist about having fibromyalgia and potential medication options. She said I need to exercise more and take a muscle relaxant. I don’t see the medication as a conclusive way of managing fibromyalgia. I’m personally more interested in long term management as opposed to short term management. Who here has tried Low Dose Naltrexone for their symptoms?
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Hibiscus
9 Feb
I hope to learn more about fibro maybe u can help me ;;
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Maple Leaf
11 Feb
I’m having a flare up for which I took pain medication yesterday. However, I’m having some brain fog today. What do you take for brain fog? Is naltrexone helpful?
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Hibiscus
13 Feb
Fibro my wife has i was asking for her;;
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Fox
19 Feb
Hey Everyone. @anna-mccormick-1 just joined the group. Please join me in welcoming them and introducing yourself here!
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Full Moon
25 Feb
The worst pre-period headache right now 😭
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Full Moon
25 Feb
Wrong group sorry
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Ice Cream
25 Feb
I can’t sleep. I’m excruciating pain through my entire upper body
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Full Moon
13 Mar
Does anyone know how disability benefits work if you get married to someone without disability? My bf and i want to get married but I need the medical 😭 has anyone experienced this?
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Full Moon
14 Mar
Hey Everyone. @trisha-barton just joined the group. Please join me in welcoming them and introducing yourself here!
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Full Moon
16 Mar
Im having pretty bad joint pain right now. ANY SUGGESTIONS?
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Full Moon
18 Mar
Hope this helps!
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Full Moon
19 Mar
Every time! 🤣
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Turtle
21 Mar
Join me in welcoming Caitlin to show your support. Reply and say hi 😊
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Canoe
22 Mar
I’m 21 and have been dealing with non stop symptoms for a few years now... I’ve had therapy for my anxiety and depression, but so far have had no help with fibromyalgia. I am waiting to be referred to a pain clinic hopefully some time soon. I had to quit university because I couldn’t concentrate at all. One project that was supposed to take maybe a week, took me 8 months. I’m bed ridden, but being so restricted depresses me. My whole life I was told I was gifted and going places in the art world. I worked non stop and achieved so much..until I couldn’t. I feel like fibromyalgia, as well as panic attacks and anxiety (probably the cause of my fibro), have truly robbed me of my potential and my future. My dad always tells me otherwise, saying no, there’s always more time, you can always do stuff when you’re better. I appreciate that he says this, and I do believe it, but currently I feel totally lost and impatient on that road. I feel like a successful career will be totally out of the picture. I don’t even know what part time job I could manage... Even before having fibro, the social side of having a job was always incredibly daunting to me. I’ve been lucky and I’m grateful that I’ve never had to have a job, however in many ways, being cared for by my family has left me with no experience, and has never challenged my fears. Now I’m more ill than I have ever been, but desperate to make some progress in life. I just don’t know how. I have just recently filled in a form to claim disability benefits. Still, I just feel like a total vegetable, and my life has no purpose. Any advice or ideas? Even a friend from this community would make the world of difference to me.
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Canoe
28 Mar
A friend of mine introduced me to these tablets today called ‘FOCUS’ by Brainzyme. They’re supposed to boost energy, enhance cognition, concentration, reduce tiredness and support mental performance. The ones she just started taking were to help her calm down, however there are stronger versions made to help with motivation and positive thinking. I wondering if they’ll help my fibromyalgia, particularly my brain fog. I’m not sure whether I want to spend the money just to try them though... I’m wondering if anyone else has tried these things, or at least heard of them?
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Full Moon
30 Mar
So true
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Full Moon
1 Apr
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Ice Cream
5 Apr
What holistic and natural approaches have you all taken that have helped you? I’ve been going to acupuncture, sound therapy, taking a bunch of vitamins and supplements. On top of fibro I have SIBO. Do any of you have gut related issues as well?
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Full Moon
8 Apr
My medication combo isn’t working as well as it did 😭 what should I do now? Im kinda scared to tell the doctor idk what shes gona do. I mean this is a low dose compared to what others take so maybe it wouldnt be too scary to increase? 😓 I HATE this disability. Hurts like heck!
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Duck
11 Apr
I hate it too thanks for sharing.
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